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Osteogenesis imperfecta: Motivational speaker Sean Stephenson inspires
Key Excerpts from Article on Website of Chicago Tribune
Posted: July 4th, 2009
http://www.chicagotribune.com/health/chi-sean-stephenson-05-...
Born with a disorder that would leave him 3 feet tall and so brittle that coughing could fracture a rib, Sean Stephenson could not walk as a child. He was racked with pain. People stared at him all the time. Except on Halloween. On Halloween, everyone looked different. His distinct physical appearance, the consequence of osteogenesis imperfecta, helped him blend in, and he loved that. But on Halloween morning 1988, he broke his leg after catching it on a door frame. His favorite day became an agonizing one. He was hysterical until his mother asked him the question that would change his life: "Is this going to be a gift or a burden?" Two decades later, the man who at birth was supposed to survive only 24 hours is doing his best to convert what would seem to be an insurmountable challenge into a gift -- to himself and others. Stephenson, who turns 30 on Tuesday, is a psychotherapist and inspirational speaker. His self-help book, Get Off Your 'But' was [just published], and on April 25 he finished filming a TV documentary pilot for A&E. A college graduate pursuing a PhD in clinical hypnosis, he's toying with the idea of running for Congress, after he opens orphanages for kids with disabilities and a summer camp aimed at eliminating "self-sabotage" in children. "I embrace my life," he said one morning from his 17th-floor office in the Oakbrook Terrace Tower. "I've lived the life of a rock star." He ... stresses that "connecting," which he defines as "an exchange of our humanity," is vastly different from communicating, the simple exchange of information. Understanding that difference can be one of the most powerful tools in changing people's lives, Stephenson maintains. "Being 3 feet tall and in a wheelchair is about 2 percent of who I am. I'm more than able. I'm playing large."
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