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Is It Disease or Delusion? U.S. Takes on a Dilemma
Key Excerpts from Article on Website of New York Times
Posted: November 11th, 2006
http://www.nytimes.com/2006/10/24/health/24cons.html?ex=1319...
After an avalanche of panicked inquiries from patients across the country who claim to have been stricken with a mysterious skin disease, the federal Centers for Disease Control and Prevention is preparing to begin a full investigation. The patients ... describe symptoms that include sores that are slow to heal, a sensation of things crawling through their skin, joint pain and persistent fatigue. Many say they believe they have Morgellons disease, a diagnosis that has received wide attention on the Internet but is viewed skeptically by some doctors. Morgellons disease joins a growing list of symptom clusters that public health officials have been forced to examine closely in part because of the organizing power and unprecedented reach of the Internet. Morgellons was brought to public attention by ... Mary Leitao, who in 2001 created a Web site describing the mysterious sores and bizarre threadlike extrusions that afflicted her young son. She said she had tried for years to find a medical explanation for his illness. Ultimately, she said, doctors accused her of staging it. After creating the Web site...she was inundated with e-mail messages from people who said they also had the disease. Many of the people who visit her site have been told by doctors that their symptoms are delusional. Several mothers...told her that they had lost custody of their children after doctors decided the youngsters symptoms were contrived. Doctors themselves are divided over whether Morgellons is a medical or a psychiatric illness. The patients are clearly suffering from something; it is just not clear what that something is. I think its a real disease, said Dr. Rafael Stricker, a physician in San Francisco who sees many patients claiming to have Morgellons. Many patients also test positive for Lyme disease.
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